PDA

View Full Version : HEPATITIS C INFORMATION



candy
06-20-2007, 01:31 AM
http://www.hepcassoc.org/index.html

http://www.hcvadvocate.org/hepatitis/factsheets.asp

http://www.hepcnet.net/

http://www.cdc.gov/ncidod/diseases/hepatitis/c (http://www.cdc.gov/ncidod/diseases/hepatitis/c/)



Above are a few links that I put up if anyone wants to read up about Hep C.
The majority of new Hep C infections each year is from IV drug users. They expect due to the fact that people are afraid to test or deny having shared needles, that the numbers are much higher than they projected

Hey, I know it is scary to test. No one wants to know and even if you have only shared once, you are at risk.
Not only is Hep C on the rise, but the number of co-infections has grown among new users, meaning HIV/Hep C.

Most of us at one time or another have shared equipment. Maybe with a close friend, a lover, even someone you only met and shared with once. You still have put yourself at risk.

Especially for new younger users, who are more likely to use among a group of friends, sharing equipment is common. Maybe you only have one needle for a few of you. This is the best time to jump in there and start some peer education. Don't be afraid to speak up and talk about reducing the risks of any of you spreading the virus or just the start of good practices that will follow you.

Working with so many young adults who are so misinformed and who misinforms them? Their friends! It's not intentional, but young adults and teens are more likely to listen to their friends than an adult.
This is where you can learn the facts and share them with your friends. Be a leader and not only will you keep your friends safe, your keeping #1 safe-YOU!

For new members, those new to IV use, and anyone interested, please read some of the above links and get the facts.

I myself not so long ago finished Hep C treatment. Given to me by a boyfriend who swore he was neg for the virus. Because of his insistence and what apeared to be hurt feelings or mistrust, I reluctantly shared the needle going after him. Rinsing with water is not enough and Hep C can live on your spoons, in your cottons, in the water you rinse that may be shared by others, and of course your needle.

Yeah, it is a few extra steps to take, maybe a drive to the pharmacy or Needle Exchange, but it is worth it.
Hep C treatment is not fun, I couldn't eat, or sleep, lost a lot of weight, lived with chronic fatigue, and felt like crap most of the time. And all this for 48 long weeks! Maybe a year doesn't seem that long, but when you feel like the way I did, it seemed forever.

Everyday, I counsel people on Hep C and HIV, this may be before they test or after. It's pretty hard to look someone in the eye and tell them they have HIV or both HIV and Hep C. To them, it's like being handed a death sentence.

Please, I urge everyone to get the facts and get tested!

I don't know about you, but I would enjoy my high a lot more knowing I am Hep C neg and using my own clean equipment. No second guessing, no stress wondering, "IF", and being responsible for your own life!

This is no lecture. This comes from the heart and not just some nurse pushing out info. I have been there and back and if I would of known then, what I know now, my liver would be in much better shape!

I luv ya all!

tui
06-20-2007, 01:36 AM
did your treatment work? i hear the rates of success are better these days.

...thanks for those links,

t

candy
06-20-2007, 10:51 AM
did your treatment work? i hear the rates of success are better these days.

...thanks for those links,

t


I can say that at this time I am currently at levels of being undetectable for the virus. Which means there is either no virus present in my body or the levels are so low that can't be detected.

Which is what you want to be at "undetectable levels!"

There really is no "cure" for Hep C. Treatment is a great option and the goal is to get the patient at levels that are undetectable in the blood. The hope is that the patient stays in this state to reduce other diseases associated with Hep C: Liver cancer, cirrhosis.

There are those few who can rid the virus from their bodies.

But, your right. The success are good, especially when found early.

flipside
06-20-2007, 11:15 AM
Great post Candy..Thanks for ALL you do!

mrklean
06-20-2007, 08:44 PM
AWESOME, gratz on the low/zero count. Does anyone want to merge this and the other thread I started a day or three ago and some other related ones? Very good info Candy thank you so much. How bad was the treatment really? Were you able to hold a job while being treated? Did the docter provide any "good" meds to help deal with the fatigue or other negative side effects? Every gastroenterologist I've spoken with seems pretty opposed to prescribing anythin as an incentive to get through treatment. Which to me could make or break my constitution to finish the interferon. And if I am going to be injecting some radioactive shit into my body doesn't it make sense that there should be a little dope in the rig too?

candy
06-21-2007, 03:14 AM
AWESOME, gratz on the low/zero count. Does anyone want to merge this and the other thread I started a day or three ago and some other related ones? Very good info Candy thank you so much. How bad was the treatment really? Were you able to hold a job while being treated? Did the docter provide any "good" meds to help deal with the fatigue or other negative side effects? Every gastroenterologist I've spoken with seems pretty opposed to prescribing anythin as an incentive to get through treatment. Which to me could make or break my constitution to finish the interferon. And if I am going to be injecting some radioactive shit into my body doesn't it make sense that there should be a little dope in the rig too?


Thanks, it was well worth it. I went through UCI, in Irvine, CA. for treatment. As far as the doctor and treatment, the treatment had it's side effects and no, my doc would not give me much. I had bad insomnia and couldn't eat much. They gave me Ambien and Trazadone for sleep, both which never worked well and as far as eating, I had no appetite. I kept up with those protein shakes.
It was not pleasant. My hair did thin out quite a bit at the end of treatment, but I have so much thick hair, it was not that noticable.
There were times I wanted to stop, but I hung in there and kept telling myself I was doing something good for myself.
I really didn't think about using and if your lucky you may get a doctor that is more tentative to your needs, such as with pain meds, sleep aides, and something for the nausea.

A few years later and I am still undetectable. I went out on disability and my doc was good about getting me off of work and I as able to collect some money.

edhorfin
06-21-2007, 09:43 AM
Congrats on being undetectable. I went thru tx twice. Relapsed after one month the first time and never got to zero on the 2nd, which I just stopped at 24 weeks. The side effects suck, but if you can clear the virus, its worth it, imho. My liver probably wont last another 20 years and Im only 50. I watched my brother in law die from liver failure in the early 90's after 2 transplants. He'd never IVd anything, got it from a transfusion. The transplants bankrupted his family and his QOL at the end was pretty lousy. Pretty much every one of my high school friends have hcv but their livers seem to be in pretty good shape, with a very slow rate of fibrosis. Its a very weird virus and almost impossible to predict what its going to do. thanks for posting the links, those here young enough should buy life insurance before their liver enzymes pop high on routine bloodwork. Insurance would cost me a fortune if I could get it now. thanks, Ed

noahzark
06-21-2007, 11:35 AM
Candy, you are awesome for sharing. I have a question for you and anyone else who went through TX.

After completing the treatment, do you still suffer any side effects from the interferion meds? I hear its pretty intense stuff.

Thanks

Noahzark

Black_Pony
06-21-2007, 12:57 PM
I'm happy to hear your treatment has been so successful!

For anyone who doesn't think it's worth getting checked and treated, my dad died of liver cancer as a result of hep C contracted from IV drug use.

Anyway, I think I'll go cook a shot (my rig might be gently used, but at least I'm the only one using it!) :rolleyes: