Being prescribed multi BT meds or LL meds

[seven10kids]

My dr is giving me a Long Lasting med then 2 BT meds. Is this common practice? Like to hit the receptors differently?

[Opiofiend]

My dr is giving me a Long Lasting med then 2 BT meds. Is this common practice? Like to hit the receptors differently?





It's commonplace with docs who know their shit. Long lasting mess handle the bulk of ur pain and the bt meds are safety nets for spikes In pain that overpower or breakthrough your extended release meds. As far as two bt meds. U have a cool doc who seems like he is willin tort u experiment with multiple meds to see what works best. I have a cool ass doc like that and he gives me 3 oc 80s for er and fentora 600&800 for btp. So it seems like u joined the lucky few of us who found caring cp docs wiilin to work with us

[krinkov]

It's commonplace with docs who know their shit. Long lasting mess handle the bulk of ur pain and the bt meds are safety nets for spikes In pain that overpower or breakthrough your extended release meds. As far as two bt meds. U have a cool doc who seems like he is willin tort u experiment with multiple meds to see what works best. I have a cool ass doc like that and he gives me 3 oc 80s for er and fentora 600&800 for btp. So it seems like u joined the lucky few of us who found caring cp docs wiilin to work with us

Why do you have an Ass Doctor prescribing all of those meds? Do you have some really bad hemorrhoids or something? :D

Thank you! I'll be here all night! Be sure to tip the waitresses!! :cool:

[Opiofiend]

Why do you have an Ass Doctor prescribing all of those meds? Do you have some really bad hemorrhoids or something? :D

Thank you! I'll be here all night! Be sure to tip the waitresses!! :cool:


Cmon man. U had to bring my lil hemmy-homies into this? Lil jorge and sanchez don't hurt anyone but me!

[lilred0005]

I don't know how you all get such leinent Dr.s to prescribe you those kind of meds @ those amts? I have CP too with a broken back, herniated disks, stenosis, & a botched surgery in the recent past. I don't get anywhere near those amts & types of meds. Don't get me wrong, I'm on 30mg roxi now & have been on almost everything at some point but my current Dr. is so paranoid about the DEA that no one in that practice will prescribe OxyContin or Methadone much less Actiq or Fentora and most of the Dr. I've run into lately won't either. I thought Fentora was not supposed to be prescribed off-label and to be reserved for cancer pain or for palliative care only. I'm just curious how you find these, what was it......these "cool ass Dr.s"?

[seven10kids]

I have lymphoma and Ive been on pretty much everything. Last year it was 60mg MS contin 3x a day with liquid solution for bt like 6x a day. now oc 80 4x a day, 30mg roxi 4x and dilaudid 8mg 3x. xanax at bed time. Sounds good right, but imagain all the real pain ive had to go through...

[feelings of u4ia]

From what I have experienced, common practice is 1 breakthrough med, and one long-acting. I don't see the need for 2 different breakthrough meds.

[lilred0005]

I have lymphoma and Ive been on pretty much everything. Last year it was 60mg MS contin 3x a day with liquid solution for bt like 6x a day. now oc 80 4x a day, 30mg roxi 4x and dilaudid 8mg 3x. xanax at bed time. Sounds good right, but imagain all the real pain ive had to go through...

I am so sorry to hear you have lymphoma. I think you should be prescribed whatever you need or want. I have serious pain from two accidents within the same yr. so I know what it's like so I'm definetly not envious, you probably need it all. I'm on 30mg roxi and some ppl think I'm lucky too, yeah right. I'd give anything to have my back fixed so I'd never need meds again. I was just suprised @ how easily some ppl are able to get meds like Fentora. I used to have a compassionate Dr. but the DEA has a lot of Dr.s scared senseless now & they aren't taking any chances, forget about pt. care.

[feelings of u4ia]

I am so sorry to hear you have lymphoma. I think you should be prescribed whatever you need or want. I have serious pain from two accidents within the same yr. so I know what it's like so I'm definetly not envious, you probably need it all. I'm on 30mg roxi and some ppl think I'm lucky too, yeah right. I'd give anything to have my back fixed so I'd never need meds again. I was just suprised @ how easily some ppl are able to get meds like Fentora. I used to have a compassionate Dr. but the DEA has a lot of Dr.s scared senseless now & they aren't taking any chances, forget about pt. care.


I am glad you pointed this out. So many people just assume that CP patients are drug scamming junkies. Opiates don't even get me high anymore...I would much rather be able to wake up without having my whole body be stiff as a board then have to take pills to function.

lilred, you really need to see a new doctor. Your history with opiates and PM should tell your doctor that you have a tolerance. You are even in South FL, where PM clinics are on every corner, like liquor stores. You need to find a new doctor.

[Opiofiend]

I don't know how you all get such leinent Dr.s to prescribe you those kind of meds @ those amts? I have CP too with a broken back, herniated disks, stenosis, & a botched surgery in the recent past. I don't get anywhere near those amts & types of meds. Don't get me wrong, I'm on 30mg roxi now & have been on almost everything at some point but my current Dr. is so paranoid about the DEA that no one in that practice will prescribe OxyContin or Methadone much less Actiq or Fentora and most of the Dr. I've run into lately won't either. I thought Fentora was not supposed to be prescribed off-label and to be reserved for cancer pain or for palliative care only. I'm just curious how you find these, what was it......these "cool ass Dr.s"?


I have about all the same symptoms as use. I just worked my way thru the system over the past 10 years dealn with cp. I was 20 when it started and it didn't get chronic u tip bout 24. Needless to say that at those ages regardless of tests mris etc, I had a tough time finding a doc to treat me. I've been thru neuros. Chiros orthos. Pt several times. Every shot and gimmic done by docs. Even went to one of the few osteos who pratice spinal manipulation. Then I went thru two pain docs and stopped short of full blown multiple fusion surgery as no surgeon thought it would help much I'm 30 now. At 27 my friend tolde to go see his pm doc. He was on a cycle accident and is parapalegic. The doc gave him oxy and actiq. So figure I had nothin to lose. It's all bout stayin persistent in finding the right doc who actaully listens and isn't scared to treAt u. The trust factor is huge and must be earned. Also my doc isn't one but scared of the sea and prescribin large doses bc he is completely by book- pIn contract monthly pill counts. Random drug tests. A fair price to pY in my opinion for those of truly in need IMO. Anyway after months of tryin to find the right combo. We settle on oxy 80 3x and fentora 600+800(1400mcg) for btp as needed (get 336 total tabs). He is truly a godsend and also treats all the side effects. He has me on lactilose for consti and androgel for low testosterone that opies cause. Bet most people don't get that as part of treatment. AnywT I'll stop ramblin and leave u with this. If u are t gettin releif then keep sear in till u find the right doc. Which will hAppen with simple persiTence. Once found build and keep their trust and life will be good

[Opiofiend]

I am glad you pointed this out. So many people just assume that CP patients are drug scamming junkies. Opiates don't even get me high anymore...I would much rather be able to wake up without having my whole body be stiff as a board then have to take pills to function.

lilred, you really need to see a new doctor. Your history with opiates and PM should tell your doctor that you have a tolerance. You are even in South FL, where PM clinics are on every corner, like liquor stores. You need to find a new doctor.




Please forgive the spellin and jumbled words. Computers broke and typin on iPhone is less then ideal


I don't know how you all get such leinent Dr.s to prescribe you those kind of meds @ those amts? I have CP too with a broken back, herniated disks, stenosis, & a botched surgery in the recent past. I don't get anywhere near those amts & types of meds. Don't get me wrong, I'm on 30mg roxi now & have been on almost everything at some point but my current Dr. is so paranoid about the DEA that no one in that practice will prescribe OxyContin or Methadone much less Actiq or Fentora and most of the Dr. I've run into lately won't either. I thought Fentora was not supposed to be prescribed off-label and to be reserved for cancer pain or for palliative care only. I'm just curious how you find these, what was it......these "cool ass Dr.s"?



Btw. Docs can prescribe a medicine for any off label reason they see fit. Thus I get fentora for cp non cancer. The FDA just doesn't allow pharm companies to advertise or "push" these drugs to docs or cobsumers for unapproved label uses. That is why cephalon got in trouble recently for pusin fentora to docs for cp back pain, but my doc can still prescribe as he sees fit.

[duck]

Cmon man. U had to bring my lil hemmy-homies into this? Lil jorge and sanchez don't hurt anyone but me!

LOL

[feelings of u4ia]

Please forgive the spellin and jumbled words. Computers broke and typin on iPhone is less then ideal

Huh? Why did you quote my post? Lol...

[deltapsik0]

I am glad you pointed this out. So many people just assume that CP patients are drug scamming junkies. Opiates don't even get me high anymore...I would much rather be able to wake up without having my whole body be stiff as a board then have to take pills to function.

lilred, you really need to see a new doctor. Your history with opiates and PM should tell your doctor that you have a tolerance. You are even in South FL, where PM clinics are on every corner, like liquor stores. You need to find a new doctor.

QFT.

Lilred,

Yeah, you definatly need to be pro-active and find a new doctor.. people think that they are stuck with that one doctor, but you really aren't..

Just get off the ass and go to new doctors and do your research on them and find one that suits your regimen the best, complaining really isn't going to get ya anywhere

[krinkov]

I see you're from California. Does one of your pain meds happen to be marijuana? Do doctors out there treat weed as a pain killer or what? I've always wondered this.

[roxi*stardust]

I don't know how you all get such leinent Dr.s to prescribe you those kind of meds @ those amts? I have CP too with a broken back, herniated disks, stenosis, & a botched surgery in the recent past. I don't get anywhere near those amts & types of meds. Don't get me wrong, I'm on 30mg roxi now & have been on almost everything at some point but my current Dr. is so paranoid about the DEA that no one in that practice will prescribe OxyContin or Methadone much less Actiq or Fentora and most of the Dr. I've run into lately won't either. I thought Fentora was not supposed to be prescribed off-label and to be reserved for cancer pain or for palliative care only. I'm just curious how you find these, what was it......these "cool ass Dr.s"?

The FDA has sent a memo to doctors advising them that Fentora is for cancer pain and kindly reminding them that it is only approved for that. Some doctors are so terrified of the DEA it's terrible. My doctor told me flat out one time that he does not like handling CP because of the DEA being up doctors asses about writing. It's absurd! I feel bad for both the doctors and us CP patients; we are being harrassed for using/prescribing the only medication that is available and effective for CP. CRAZY:mad:

I have lymphoma and Ive been on pretty much everything. Last year it was 60mg MS contin 3x a day with liquid solution for bt like 6x a day. now oc 80 4x a day, 30mg roxi 4x and dilaudid 8mg 3x. xanax at bed time. Sounds good right, but imagain all the real pain ive had to go through...

A Lymphoma DX would not be considered "off-label", so seven's doctor is writing for it's approved use.

[lib.sOCialist]

I see you're from California. Does one of your pain meds happen to be marijuana? Do doctors out there treat weed as a pain killer or what? I've always wondered this.

no, no, its not treated in that way at all, in fact the doctors dont even see or come into contact with weed if they prescribe it for a patient. the patient is referred to a clinic (dispensary) and can purchase an amount close to what was recommended by the doc.

[Opiofiend]

The FDA has sent a memo to doctors advising them that Fentora is for cancer pain and kindly reminding them that it is only approved for that. Some doctors are so terrified of the DEA it's terrible. My doctor told me flat out one time that he does not like handling CP because of the DEA being up doctors asses about writing. It's absurd! I feel bad for both the doctors and us CP patients; we are being harrassed for using/prescribing the only medication that is available and effective for CP. CRAZY:mad:
A Lymphoma DX would not be considered "off-label", so seven's doctor is writing for it's approved use.


That's not quite accurate if u read the letters. I get fentora for off label non cancer cp. Off label restrictions are only for how a drug can be marketed to docs and consumers by the phRm co. Docs can prescribe as they see fit off label. The warning was to reiterate to docs to only use fentora ad a bt med for people already opie tolerant from round the clock dosing. It was sent out bc ignorant docs were prescribing for migraines and other symptoms in non tolerant people. And we all know what no tolerance and large doses of fast acting fentanyl eauals

[seven10kids]

I see you're from California. Does one of your pain meds happen to be marijuana? Do doctors out there treat weed as a pain killer or what? I've always wondered this.

I have like 3 doctors saying that they know I smoke weed and that it is all good.

They were worried about bleo toxisity (sp?) when I was doing chemo, I told them I mostily vaporize and eat the weed, but they still had me go for the lung test but they were lile " you have the lungs of a swimmer" and the dr. couldnt really say anything. Not to mention the weed was helpin with naseua and appitite better than the outreageously priced Rx they were giving me. Comapzine and Zophrane (the Zophrane was like 50$ a pill at the pharm with no insurance. NO BS. The hospital pharmacist came up to me one day and gave me like 50 though!)

So, yes, Medical MJ is another pain killer/all around feel better drug I take. My newest PM dr had the list of drugs that I take and I said yes to pain killers then with out hesitation said yes to MJ and he said real quick "you got your reccomendation right?" and I nodded my head yes and he was right on to the next question without second thouht,

I really like how the state law is rather lax and the MJ is not looked down apon, like I know there are places where the Pain Clinics make you drug test and all, so obviously you could not smoke,

remember that the MJ is "reccomended to me" and the rest of my opiates are Rxed to me. I am also reccomended to take a walk every day and eat healthy.

I am doing some research on the Fentora right now.

I told my dr. no to any fentynl. He keeps pushing to give me the patch and I have to almost hold his hand back from writhin the script. It makes me waayyyyy to out of it.

I don't want to be asleep all day, I want to be functional.

[deltapsik0]

I have like 3 doctors saying that they know I smoke weed and that it is all good.

They were worried about bleo toxisity (sp?) when I was doing chemo, I told them I mostily vaporize and eat the weed, but they still had me go for the lung test but they were lile " you have the lungs of a swimmer" and the dr. couldnt really say anything. Not to mention the weed was helpin with naseua and appitite better than the outreageously priced Rx they were giving me. Comapzine and Zophrane (the Zophrane was like 50$ a pill at the pharm with no insurance. NO BS. The hospital pharmacist came up to me one day and gave me like 50 though!)

So, yes, Medical MJ is another pain killer/all around feel better drug I take. My newest PM dr had the list of drugs that I take and I said yes to pain killers then with out hesitation said yes to MJ and he said real quick "you got your reccomendation right?" and I nodded my head yes and he was right on to the next question without second thouht,

I really like how the state law is rather lax and the MJ is not looked down apon, like I know there are places where the Pain Clinics make you drug test and all, so obviously you could not smoke,

remember that the MJ is "reccomended to me" and the rest of my opiates are Rxed to me. I am also reccomended to take a walk every day and eat healthy.

I am doing some research on the Fentora right now.

I told my dr. no to any fentynl. He keeps pushing to give me the patch and I have to almost hold his hand back from writhin the script. It makes me waayyyyy to out of it.

I don't want to be asleep all day, I want to be functional.

If you think fentanyl patches make you out of it wait till you try Fentorra tabs.. those things are no fucking joke bro..

[digby]

From what I have experienced, common practice is 1 breakthrough med, and one long-acting. I don't see the need for 2 different breakthrough meds.

As Opiofiend has alluded to, it isn't uncommon among doctors that really know their stuff. Many CP patients have multiple diseases/ailments and often they require different opiates to address the different problems. I have been prescribed as many as 4 different breakthrough meds at the same time along with a regular daily opiate for "universal" pain reduction. I get Fentora as one of the breakthrough meds, but use it as more of a "last resort" med, as it is shorter acting and more expensive than practically anything else. They do work great though.

And yea, Lilred....you do need a new doc!

[Opiofiend]

As Opiofiend has alluded to, it isn't uncommon among doctors that really know their stuff. Many CP patients have multiple diseases/ailments and often they require different opiates to address the different problems. I have been prescribed as many as 4 different breakthrough meds at the same time along with a regular daily opiate for "universal" pain reduction. I get Fentora as one of the breakthrough meds, but use it as more of a "last resort" med, as it is shorter acting and more expensive than practically anything else. They do work great though.

And yea, Lilred....you do need a new doc!




I read ur signature line and was interested by it. So I did a search on that doctor. It has opened up a whole new world of relevant info to me. So thank you. Also we need to do our part to help those few courageous docs out there who actually put the oath they took to first do no harm over being afraid of those senseless govt robots who would seek to harm their lives and livelihoods