What's the chance...?

[ndoftaworld]

Of being scripted Actiq's for BT pain ya think? I'm not with the dr. who started me on Fent anymore, but that's good, cause he didn't give me ANYTHING for BT pain. This doc doesn't want to up my patches, instead puts me on Endocet 5's (Generic percocets) for the extra agony I'm still feeling.

I'm sure most responses will be "not anytime soon", but ya gotta remember... I'm the guy who talked his way from ONLY perc 5's to 25mcg Duragesic's in less than 6 months. When I see him in November (fent and perc's get refilled 23rd of Oct. when I call the pharmacy, they'll fax the form to the Health Dept. I go pickup the scripts, drop em off, and walk out a very happy man.), I'm gonna tell him that the perc's are better than nothing, but not much... I'll play stupid for awhile, let him decide which quick-acting opies I get next, if nothing else, maybe he'll go to roxi's (as long as it's not 5mg, cause besides being apap free, kinda defeats the purpose)

Eventually tho, I'm gonna just come out and ask... "I'm already on Fent patches, no charge to me. I've also qualified for Actiq's assistance program, if @ all possible, I'd like to keep the 'buffet' of meds I take down to a minimum." Then, I'll give him my most innocent smile, wince a little in pain, and ask to be ONLY on Fent. Cause seriously, how can he think that 5 or 10mg oxy + apap (i can take 2 @ a time if needed :rolleyes: ) will even touch the pain that steady release fentanyl doesn't??

Of course, I'm gonna hafta jump through his hoops, w/ follow-up appointments @ GI's, Neurologists (if it ain't caused by the Crohn's and nothing shows up on film... it's gotta be nerves right? The PM doc I saw, once, made the tentative diagnosis of neuropathic pain.), and prolly his mudder for some old fashioned chicken soup. But he seemed like a nice enough, er, caring enough guy that as long as I'm not seeming fiendish or climbing the walls, he'll work with me. Probably go slower than my initial sled ride of opiates, but, again, I'm @ the top of the CP meds ladder... of course BT meds are going to eventually equal or surpass that. Duragesic + Actiq = 100% fucked up, 24/7.

Hehe, just thinking... script gets refilled on/around 23rd, my bday is Halloween (31st) AND a Friday... wow, my 24th might actually be one to remember, if I'm able to that is :cool: Think I'll call my friend and see if the shrooms are ready to harvest too, seeing all the costumes while tripping has got to be some scary shit!

Nd

[ZodiacKiller]

Well, I think if you can show him your documentation for having qualified for Actiq's assistance program, that may help. Of course, it may also indicate your obsession with opiates, too, I dunno. I'd tread carefully, whatever you do.

I've always wanted to try those pops, and came very close to scoring a bunch of the 1600mcg (I think that was the dosage....), but it fell through at the last minute and I've never heard of anyone in my circle having 'em again. So if it works out for ya, I'm coming over for a sucker!

ZK

[ndoftaworld]

IF... it happens, I'll prolly just get 200's, but shit, 200mcg of fent in 15min. PLUS the 25mcg/h the patch provides? I should be feelin' pretty damn good!

Like I said, gonna let the doc be the 'smart one' for a few months, then spring it on him ;) I have a patient advocate/rep for disability, so I'll just tell him that she applied for the ass. program, and ALL he has to do... is write that wonderful word on his rx pad. I kinda figured the same thing, if I'm already approved for them, and they will definitely improve my functionality...

And ZK, I'll save one for ya! (If I can go w/o using them all in the first week that is)

EDIT: And... me?? obsessed with opiates? not a chance, hehe.

Nd

Hmm, rxhope.com says patient must be on Actiq for breakthrough cancer pain... no cancer here. Got a couple of aces hidden though, what Nd wants... Nd gets! :D

HAHAHA! </maniacal laughter>

EDIT: SHIT!! All the phone #'s I found for Cephalon (the supporter of the program) are disconnected...? How the hell are people supposed to request an app? Might have to go @ it with a different angle, my county assistance pays for my meds... but I don't know if they'll drop over a grand a month for one script.

Nd

[Boxcar]

nd, its really hard to get those, most that get them and i say MOST, have been one long time since it was experimental, very few doctors will prescribe it. i knew a guy on em 10 years now, his dr. just sold his practice, the new dr. says he wont prescribe it. hes in a big ol fight about it. im just sayin. its hard to get. i got it precribed to me lasted 4 months fuckin KAISER said NO MORE PAY. shits expensive. i wish ya the best tho. IMO not one thing ive had in 6 years of CP that works as well as those. NOTHING. pain is 60 to gone in less than 10 min. not very long lasting, but gets the job done good. talk aboout a tolerence fuck up. nothin will do it to ya like those


Might have to go @ it with a different angle, my county assistance pays for my meds... but I don't know if they'll drop over a grand a month for one script.

Nd


a grand a month? over a grand a box
most scripts are for 4 boxes a month.

[ndoftaworld]

a grand a month? over a grand a box
most scripts are for 4 boxes a month.

A box?? Whew, I figured the low dose ones (200 or 400) were a LOT cheaper. I did read in another thread (lolli's I think) that her ins. covers almost 4 grand a month for her script, but she gets 1200's right?

Everything I can find about them says only for cancer BT... what about fentora? Issat any easier to get?

Nd

[Boxcar]

i think she gets 800, they dont raise you on those but every 15 20 years, only cuz theres nowhere to go from those. top of the line. i base my pricee on the 800 you could be right. i didnt know there was 200 or 400, so i guess it could be half the price. i try fer the 800 tho, cuz you wont get raised for a long long time.

has been my experience. i now get mine from another person, i pay per pop and it costs me, and he dont pay a dime. pure profit, hes on done, so he just sells the pops. im lucky to know him tho. those things are life savers for me.

[nick]

I think,at your age and situation,I'd find a good doc and stop trying to scam him and start working with him.


Remember,providing you're not hit by lightening or savaged by a wild animal,this is a long road that you're on.

[ndoftaworld]

i think she gets 800, they dont raise you on those but every 15 20 years, only cuz theres nowhere to go from those. top of the line. i base my pricee on the 800 you could be right. i didnt know there was 200 or 400, so i guess it could be half the price. i try fer the 800 tho, cuz you wont get raised for a long long time.

has been my experience. i now get mine from another person, i pay per pop and it costs me, and he dont pay a dime. pure profit, hes on done, so he just sells the pops. im lucky to know him tho. those things are life savers for me.

Yeah, I feel kinda like ZK. I've never had access to them, came really close once, but... nadda.

To be scripted them, month after month, just seems awesome. I'd need a VERY liberal dr., and with me being on general assistance (hell, getting my patches from him surprised me), the dr. isn't gonna do anything to bring attention to himself. So... basically, it's just a nice little fantasy, but if I keep my hopes high, then chances are that I'll @ least get some GOOD BT meds... opana's wouldn't be too shabby either.



I think,at your age and situation,I'd find a good doc and stop trying to scam him and start working with him.
I'm not trying to scam anyone. Yeah, trying to get fent for BT pain is asking for the moon... but if I don't lie to the dr. and let him try his ideas first (and if they work, great! But, perc 5's DON'T), then I see no problem in informing him what I would prefer for my treatment. After all, like ya said, it will be a very long road... and I have every right to tell him what works, what doesn't, and what I will do, or won't do (there are a FEW things I absolutely refuse to consent to) to try and relieve my CP. Sure, docs hate patients who try and do their job for them, but they also loathe those that sit back, take everything, and not participate in their own treatment. I gotta be active in my treatment, just not TOO active.

OH. And being on county assistance means this isn't my permanent dr. he is just the one with the soonest opening when I called last week, I won't be on assistance forever and then I'll have to find a good doc, and I will do my damndest to keep him. Right now tho... if I'm honest with him, I don't think asking for better relief is 'scamming him' @ all.


Nd

[Boxcar]

active, yes, suggestive, ok as well, if you have a doc that isnt a prick and cares what works for you. are yer percs paid for. im in CA and when i had county ins. i never new when i got to the pharm. if it was paid or not. sometimes yes sometimes no. whatever you do puch but not too hard, its yer body its ok to tell them what works and what dont. at least ask to goto percs 10s 1st. then go from there.

[ndoftaworld]

active, yes, suggestive, ok as well, if you have a doc that isnt a prick and cares what works for you. are yer percs paid for. im in CA and when i had county ins. i never new when i got to the pharm. if it was paid or not. sometimes yes sometimes no. whatever you do puch but not too hard, its yer body its ok to tell them what works and what dont. at least ask to goto percs 10s 1st. then go from there.

Totally, I'm not going to TELL him anything. I'll report my progress, or lack thereof, and offer suggestions about meds that I've researched, but if I try to take control, he'll pretty much rebel and I'll see how easy (and painful) it is to fall back to Percocet's 4 to 5x a day, ONLY.

General Assistance (GA) pays for all meds prescribed by the Dr.'s that they send you to (medical and psych), and any referral appointments that they make are covered as well. They have rent/utility assistance too, but I'm not worried about that right now, just trying to get my health situation as stable as possible.

Nd

[nick]

Yeah, I feel kinda like ZK. I've never had access to them, came really close once, but... nadda.

To be scripted them, month after month, just seems awesome. I'd need a VERY liberal dr., and with me being on general assistance (hell, getting my patches from him surprised me), the dr. isn't gonna do anything to bring attention to himself. So... basically, it's just a nice little fantasy, but if I keep my hopes high, then chances are that I'll @ least get some GOOD BT meds... opana's wouldn't be too shabby either.

I'm not trying to scam anyone. Yeah, trying to get fent for BT pain is asking for the moon... but if I don't lie to the dr. and let him try his ideas first (and if they work, great! But, perc 5's DON'T), then I see no problem in informing him what I would prefer for my treatment. After all, like ya said, it will be a very long road... and I have every right to tell him what works, what doesn't, and what I will do, or won't do (there are a FEW things I absolutely refuse to consent to) to try and relieve my CP. Sure, docs hate patients who try and do their job for them, but they also loathe those that sit back, take everything, and not participate in their own treatment. I gotta be active in my treatment, just not TOO active.

OH. And being on county assistance means this isn't my permanent dr. he is just the one with the soonest opening when I called last week, I won't be on assistance forever and then I'll have to find a good doc, and I will do my damndest to keep him. Right now tho... if I'm honest with him, I don't think asking for better relief is 'scamming him' @ all.


Nd

I apologise.It's just I thought I saw some posts of yours discussing smoking fent.

My mistake.

[ndoftaworld]

I apologise.It's just I thought I saw some posts of yours discussing smoking fent.

My mistake.

No... ur correct in that regard. I tried it, the first night I got my name brand patches. Didn't get a good hit worth shit, so... not jonesing for it smoked. Good thing too, cause I could burn through 10 patches in a few days. Wearing them is doing pretty good, they're staying put and all, but I still feel that intense, gut-wrenching (literally) pain bite through. The steady baseline pain is not too bad, but those perc's just aren't cutting through the BT.

Fent for BT is a fantasy really, as I said, even if I were to pitch it to him, it'd be @ least 6 months. But I am gonna ask for something else at my next appt. preferrably something w/o apap (I've taken SO much fucking tylenol in the past year, my liver's pretty pissed at me :rolleyes: )

Thx for the advice tho, I know that being too pushy will make me end up hurting all over again, and there is NO WAY I'm getting cut off (or back) from the patches. As someone posted, 'Once you go Fent, you never go back.'

Nd

[jonny-5]

youll either get it, or get all your meds taken away for drug seeking. good luck tho.

[Boxcar]

youll either get it, or get all your meds taken away for drug seeking. good luck tho.


pretty much says it all

[ndoftaworld]

No argument here. Like I said, I'm gonna go through all the other typical BT meds he offers. If something does actually work (I'm sure something will) even oxy @ a dose higher than 5mg would probably do wonders. And after a LONG time has passed, if I've tried everything else and still no relief... I'll bring it up. I don't really think he'd label me a seeker if we've gone through 5 or 6 different meds, and I'm currently ON fent, to bring up fent as a final possibility.

But... as I also said. It's only temporary w/ him. I'll either be switched to another doc @ the health dept or finally get approved for medicaid and can choose my dr.'s, then I'll face this dilemma.

Even though I've suggested some pretty far fetched things in my posts about upping doses, changing meds, etc. when I do see the doc, I'm pretty passive. I somehow do manage to get what I want eventually though, either because I'm stuper-frickin' lucky, or horribly UNlucky. But I've figured out how to implant my suggestions w/o coming off as ordering him to make it happen.

Now my doc in TX, HE was a good dr. He wasn't afraid to write, but he was also making sure I could handle each step, including financially. But, oh well. I'm with my kids... THAT's what matters most.

Nd

[Boxcar]

theres always the

" i was searchin the internet, reading up on the patches and i came across something called ACTIQ"
bit might work w/o raising suspision too badly

[nick]

theres always the

" i was searchin the internet, reading up on the patches and i came across something called ACTIQ"
bit might work w/o raising suspision too badly

Yeah,tell him you heard all about it at a site called opiophile.............maybe not.

[ndoftaworld]

theres always the

" i was searchin the internet, reading up on the patches and i came across something called ACTIQ"
bit might work w/o raising suspision too badly

I still think it's a LONG shot. Everything I've read says for cancer patients, and 'off-label' prescriptions do happen, but are very rare.

Then again, fent in itself was created for cancer pain, and now it's available for wider uses, so... I guess there's always a chance :confused:


Yeah,tell him you heard all about it at a site called opiophile.............maybe not.


hehe, I could just wear my t-shirt into my next appt. and start blasting away with random facts about all opies, and as he is writing his suspicions down, I can just point to the shirt and say 'Smoking fent is the BEST though, any chance for a script of just the gel? None of that crappy plastic to get in the way?" haha!
Nd

[Boxcar]

ive known 3 different ppl to be prescribed the pops, including myself. not one of them has cancer. myself i have a spinal and bone disease, the others i dont know specifically but they were for back pain. you dont hafta mention the cancer part, just that you saw somthin about em online.

[nick]

I'd say that I came across mention of it on line,at a cp forum or an on line support group specific to your illness.That way it doesn't look like you're trawling the web for drugs information.

[Boxcar]

y thatll work too.... the fact that you got PA means youve been online lookin. it wouldnt be a far streach that you came across the pops. plus bring it up like youre all questions.

[ndoftaworld]

ive known 3 different ppl to be prescribed the pops, including myself. not one of them has cancer. myself i have a spinal and bone disease, the others i dont know specifically but they were for back pain. you dont hafta mention the cancer part, just that you saw somthin about em online.

Ah, but I see your (currently @ least) in CA, very liberal (med. marijuana... I would SO have a script for that if I was there :( ) especially compared to Nebraska. And being the state capital's Health Department... It just seems really far-fetched that he would stick his neck out like that for a patient, and a new one @ that. The patches were previously prescribed, and I was already on their assistance program. But if he writes a new script for fent on TOP of the patches, that's the kinda thing that would scare me if I were a MD.

I'm not saying I'm gonna just drop it, hell no. I'm just going to 'hover' for awhile on lesser IR meds (as long as their not frickin' perc's!) until the doc trusts me (him or a new one) and knows that I DO research my meds and aren't just looking for a quick buzz.

Thx for the tips tho, those small little off-hand comments that people have said to me jokingly have actually worked. (My pharmacist thinks that since I'm taking chronic pain meds, I shouldn't be taking all this tylenol with them... THAT got me off of perc's and onto OC's :) )

I'll definitely let y'all know when I get em tho, cause I am gonna be one FUCKED up CP patient!

Nd

[Boxcar]

Ah, but I see your (currently @ least) in CA, very liberal (med. marijuana... I would SO have a script for that if I was there :( ) especially compared to Nebraska. And being the state capital's Health Department... It just seems really far-fetched that he would stick his neck out like that for a patient, and a new one @ that. The patches were previously prescribed, and I was already on their assistance program. But if he writes a new script for fent on TOP of the patches, that's the kinda thing that would scare me if I were a MD.

I'm not saying I'm gonna just drop it, hell no. I'm just going to 'hover' for awhile on lesser IR meds (as long as their not frickin' perc's!) until the doc trusts me (him or a new one) and knows that I DO research my meds and aren't just looking for a quick buzz.

Thx for the tips tho, those small little off-hand comments that people have said to me jokingly have actually worked. (My pharmacist thinks that since I'm taking chronic pain meds, I shouldn't be taking all this tylenol with them... THAT got me off of perc's and onto OC's :) )

I'll definitely let y'all know when I get em tho, cause I am gonna be one FUCKED up CP patient!

Nd
you shouldnt have all that APAP, but thats what most drs give, or norcos. tell yer dr. what yer pharm said.

[bronyraur]

youll either get it, or get all your meds taken away for drug seeking. good luck tho.

I wouldn't be surprised if something to that effect happened.

ND, I'd suggest that you see what other (stronger/more effective) BT meds your doctor might consider putting you on...chronic pain is a long-term battle, and you don't want to use the heavy weaponry (Actiq) before it's ABSOLUTELY necessary.

I know what it's like to get an idea stuck in your head when it comes to opiates, but this is something you really don't want to do until you HAVE to.

At any rate, good luck and I hope you get an effective BT med of some sort.

[Boxcar]

I wouldn't be surprised if something to that effect happened.

ND, I'd suggest that you see what other (stronger/more effective) BT meds your doctor might consider putting you on...chronic pain is a long-term battle, and you don't want to use the heavy weaponry (Actiq) before it's ABSOLUTELY necessary.

I know what it's like to get an idea stuck in your head when it comes to opiates, but this is something you really don't want to do until you HAVE to.

At any rate, good luck and I hope you get an effective BT med of some sort.

hes got a major point bro, i mean yer young, those big guns thats it bro. im tellin you as a 5-6 veteran to fent, i almost wish i never met her. its been a battle, but since the fent, nothin touches the pain i got. or the WD, so when i run out, its FUCKIN HORRIBLE WANNA DIE SHIT! so i mean i aint tellin ya dont do it. but i dunno.

[ndoftaworld]

I'd say that I came across mention of it on line,at a cp forum or an on line support group specific to your illness.That way it doesn't look like you're trawling the web for drugs information.

y thatll work too.... the fact that you got PA means youve been online lookin. it wouldnt be a far streach that you came across the pops. plus bring it up like youre all questions.

Ya, I could say "I was checking the details of the PAP for duragesic's and under the fentanyl header they also listed something called Actiq for BT pain, are they effective even if currently on the patch? Hmm, how quick do they work, because all the pills take @ least 10-15 min. to begin working, and that seems like a lifetime when this pain hits. I noticed that they ALSO have an assistance program, Dr. would you consider helping me apply for it?"

Sumthin' like that might work...

Nd

[Boxcar]

Ya, I could say "I was checking the details of the PAP for duragesic's and under the fentanyl header they also listed something called Actiq for BT pain, are they effective even if currently on the patch? Hmm, how quick do they work, because all the pills take @ least 10-15 min. to begin working, and that seems like a lifetime when this pain hits. I noticed that they ALSO have an assistance program, Dr. would you consider helping me apply for it?"

Sumthin' like that might work...

Nd


might

[LorTabitha]

Ya, I could say "I was checking the details of the PAP for duragesic's and under the fentanyl header they also listed something called Actiq for BT pain, are they effective even if currently on the patch? Hmm, how quick do they work, because all the pills take @ least 10-15 min. to begin working, and that seems like a lifetime when this pain hits. I noticed that they ALSO have an assistance program, Dr. would you consider helping me apply for it?" Sumthin' like that might work...

Whenever I bring up things I found online, I always try to act really contrite. I say (sheepishly) "I found something on the internet I wanted to ask your opinion about. I know the internet is really an "iffy" place to get info, so I printed it out to discuss with you. What do you think about..."

It's worked every time. :cool:

[OxyContinuously]

hi nd,

i was just goin to say, be careful about that, b/c i know u have real pain issues, and ur relatively young, with your whole life ahead of you.

that being said, currently, fentanyl is the strongest narcotic available for pain control...my only concern is that if u go the fent route and use only fent for long term and breakthrough pain also, god help you if and when your pain either A) gets worse (which of course no one hopes, but it's possible) and B) ur tolerance to fent gets bigger so that it doesn't really do anything to you

then what?

dilaudid, morphine, oxy; these are all nothing at that point, and you'll be in a tough position...

also, even in therapeutic, doctor prescribed, tolerance-permissive doses, fentanyl is one of those narcotics that can cause respiratory depression without warning...be careful, b/c as the dose of fent goes up, so does ur chances of all sorts of complications, like narcolepsy, and worst of all sleep apnea...it's serious bro; u could stop breathing...plus i know u have benzo scripts as well, and honestly, from a harm reduction and concerned point of view, i think ur playing with fire, so pls keep that in mind and be mindful of the worst case scenario...no one wants to see anything bad happen to u, you dig?

careful with this one....think long-term about what would be the best thing for you...maybe keep the fent patch, but use something else as breakthrough, dilaudid maybe? or Opana? i hear Opana works really well...Reddragon uses it and he likes it; his pain is well controlled with it...Roxi 30's are good breakthrough meds as well; i mean i know ur tolerance is high--perhaps ur pain doc could take this into account and u could take like 2 roxi 30's every 4 hrs as needed for that? just trying to throw out suggestions b/c i'm thinking about when you're 40 or 50,, and if you've exhausted fentanyl in your mid-twenties, you'll be a very unhappy camper by then!!

take care and hit me up on my page if u wanna talk some more or whatever!
later

[Ludakris]

^^^ I know you don't want to hear it, and have a mind set on something, but what OxyC said is really something you want to consider. (BoxCar is giving you some REALLY good advice from a person who knows first hand.).

I really hope you take this stuff to heart ND, yes you've smooth-talked your way from Perc 5's to fent patches in a matter of months...but if your pain is anywhere near as bad you say it is, you are going to paint yourself into a very shitty corner, climbing to the top of the pain control ladder so fast will be fun in the short, but is going to cause you years of punishment in the long, you'll be 30 years old with an implanted morphine/dilauded pump maxed out on dose and still in agonizing pain.

I would seriously count my blessings that you've been so lucky as to not only get patches, but you've got on the Patient Assistance Program and are getting them for free. Be happy with what you have for a while, and wait as long as you can to climb another step on that opi ladder because that ladder only goes one way...

[ndoftaworld]

Whenever I bring up things I found online, I always try to act really contrite. I say (sheepishly) "I found something on the internet I wanted to ask your opinion about. I know the internet is really an "iffy" place to get info, so I printed it out to discuss with you. What do you think about..."

It's worked every time. :cool:

I did it @ first w/ Duragesic at my dr.'s in TX. He said nope, smallest dose available was twice the OC's I was taking @ the time. Took 2 months to finally get the switch, from him anyway.


hi nd,

i was just goin to say, be careful about that, b/c i know u have real pain issues, and ur relatively young, with your whole life ahead of you.

that being said, currently, fentanyl is the strongest narcotic available for pain control...my only concern is that if u go the fent route and use only fent for long term and breakthrough pain also, god help you if and when your pain either A) gets worse (which of course no one hopes, but it's possible) and B) ur tolerance to fent gets bigger so that it doesn't really do anything to you

then what?

dilaudid, morphine, oxy; these are all nothing at that point, and you'll be in a tough position...

also, even in therapeutic, doctor prescribed, tolerance-permissive doses, fentanyl is one of those narcotics that can cause respiratory depression without warning...be careful, b/c as the dose of fent goes up, so does ur chances of all sorts of complications, like narcolepsy, and worst of all sleep apnea...it's serious bro; u could stop breathing...plus i know u have benzo scripts as well, and honestly, from a harm reduction and concerned point of view, i think ur playing with fire, so pls keep that in mind and be mindful of the worst case scenario...no one wants to see anything bad happen to u, you dig?

careful with this one....think long-term about what would be the best thing for you...maybe keep the fent patch, but use something else as breakthrough, dilaudid maybe? or Opana? i hear Opana works really well...Reddragon uses it and he likes it; his pain is well controlled with it...Roxi 30's are good breakthrough meds as well; i mean i know ur tolerance is high--perhaps ur pain doc could take this into account and u could take like 2 roxi 30's every 4 hrs as needed for that? just trying to throw out suggestions b/c i'm thinking about when you're 40 or 50,, and if you've exhausted fentanyl in your mid-twenties, you'll be a very unhappy camper by then!!

take care and hit me up on my page if u wanna talk some more or whatever!
later

^^^ I know you don't want to hear it, and have a mind set on something, but what OxyC said is really something you want to consider. (BoxCar is giving you some REALLY good advice from a person who knows first hand.).

I really hope you take this stuff to heart ND, yes you've smooth-talked your way from Perc 5's to fent patches in a matter of months...but if your pain is anywhere near as bad you say it is, you are going to paint yourself into a very shitty corner, climbing to the top of the pain control ladder so fast will be fun in the short, but is going to cause you years of punishment in the long, you'll be 30 years old with an implanted morphine/dilauded pump maxed out on dose and still in agonizing pain.

I would seriously count my blessings that you've been so lucky as to not only get patches, but you've got on the Patient Assistance Program and are getting them for free. Be happy with what you have for a while, and wait as long as you can to climb another step on that opi ladder because that ladder only goes one way...

I hear ya guys. The junkie in me is trying to CLIMB, CLIMB, CLIMB!! Of course, wanting more, stronger narcotics is always on my mind. But ur right, if my pain can be helped by dillies or roxi's than I'll be happy for awhile.

Even I, sometimes, have a hard time believing that my pain gets so bad I need fent ON TOP of fent. But then it does hit, and the perc's just laugh at me (only 5mg haha, look @ that fool, like we can actually DO something for him??), so I know I definitely need something stronger... but extra fent is (and very well should be) a goal that is LONG TERM.

Like I said, I'm still not sure if jumping to patches this quick means I'm incredibly lucky, or horribly unlucky. Cause I am @ the top of chronic pain meds, and if the baseline pain gets through? Dosage increase (or more patches) is the only answer, and once I reach the highest dose? I'm boned.

I will NOT give up the patches, but I'm gonna try to calm that little voice in my head saying (you can get LOTS of fent, QUICK ACTING, just ask in the right way...) and leave that for later, IF I even need it.

Wish I could find some tar in this bum-fucked town, I know it don't last worth shit, but the thought of utter painlessness for 15min. sounds like heaven right now...

Thx again for the advice, I know HOW I'll ask, but gonna wait for the right time B4 I ask. I'll let him up me @ my next appointment, might suggest dillies, opana's, or roxi's... even w/ literature like LT said, that way he'll still think I'm normal, asking for MORE! But at least I'm not a bottom of the barrel druggy and jump for the finish line right away ;)

EDIT: Hehe, I just received an email saying that the Welcome Kit for Actiq I requested yesterday is on it's way... weird fucking timing, happens a lot to me tho. :)

Nd

[Boxcar]

hi nd,

i was just goin to say, be careful about that, b/c i know u have real pain issues, and ur relatively young, with your whole life ahead of you.

that being said, currently, fentanyl is the strongest narcotic available for pain control...my only concern is that if u go the fent route and use only fent for long term and breakthrough pain also, god help you if and when your pain either A) gets worse (which of course no one hopes, but it's possible) and B) ur tolerance to fent gets bigger so that it doesn't really do anything to you

then what?

dilaudid, morphine, oxy; these are all nothing at that point, and you'll be in a tough position...

also, even in therapeutic, doctor prescribed, tolerance-permissive doses, fentanyl is one of those narcotics that can cause respiratory depression without warning...be careful, b/c as the dose of fent goes up, so does ur chances of all sorts of complications, like narcolepsy, and worst of all sleep apnea...it's serious bro; u could stop breathing...plus i know u have benzo scripts as well, and honestly, from a harm reduction and concerned point of view, i think ur playing with fire, so pls keep that in mind and be mindful of the worst case scenario...no one wants to see anything bad happen to u, you dig?

careful with this one....think long-term about what would be the best thing for you...maybe keep the fent patch, but use something else as breakthrough, dilaudid maybe? or Opana? i hear Opana works really well...Reddragon uses it and he likes it; his pain is well controlled with it...Roxi 30's are good breakthrough meds as well; i mean i know ur tolerance is high--perhaps ur pain doc could take this into account and u could take like 2 roxi 30's every 4 hrs as needed for that? just trying to throw out suggestions b/c i'm thinking about when you're 40 or 50,, and if you've exhausted fentanyl in your mid-twenties, you'll be a very unhappy camper by then!!

take care and hit me up on my page if u wanna talk some more or whatever!
later

im gonna quote him, even tho he hates me fer somthin, but regardless dude oxycontinuously is right. im 33 im at the top of the line. and think what if you get worse? of what if and im just sayin for thought.... you really got some cancer, then WTF. yer fucked. be smart right noe ferget about it... when yer 30 er so, then go fer the ACTIQ. i assure you you are gonna cause yer self unnecissary MISERY that you dont need. my fent useage the last 3 years, i mean it aint all itc cracked up to be. shit works great, but when you run out and have no money or no other options. yer fucked, you wanna kill yerself. yer young still man, whats the rush. besides. like in my case, i run out of fent my onlt street hook up is vics... that said, how many fuckin vics you think it takes to make yerslef well? nevermind the buzz cuz youll never get one, but there i days i needed 30- 40 pills to feel even decent, but still not all the way right.
i like you ND... and i think at this point yer inviting a monster you dont need yet. so kickback, stop bein greedy, enjoy the patches, and just work on dif BT mends. it a process, almost a game. but youll thank everyone thatts sayin not to get to deep too fast. anyway man, id hate to see you. livin like i hafta sometimes.