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Cherry's Jubilee
05-19-2008, 12:22 PM
Sponsors of the Wired for Health Care Quality Act (Kennedy (D-MA and 15 Co-Sponsors) are pushing their bill through the Senate via the "unanimous consent" calendar. In English, this means that this week the bill will be voted on, as is, with no debate and no amendments. Link to the bill:

1693 (http://www.patientprivacyrights.org/site/R?i=2UADGMkAM-bk1Ur7AGhc4g..)http://www.patientprivacyrights.org/site/PageServer?pagename=Legislation#1693


The "Wired Act" sets up a national Health IT system for electronic health records with very few privacy protections. The bill will open Americans to widespread discrimination: Employers can deny promotions or jobs, insurers can set rates higher or even deny coverage, schools can refuse admission to students based on illnesses or banks could refuse loans or charge more for credit.
Please let your Senators know you care about your health privacy. Use your voice to influence this urgent issue. No one should have to choose between privacy and health.


Click on this link:

https://secure2.convio.net/appf/site/Advocacy?JServSessionIdr007=xvfyk2by64.app2b&cmd=display&page=UserAction&id=171to to send a letter to your Senators asking them to vote AGAINST the "Wired Act" and prevent rampant discrimination.
Links to the bill and its history are on the Patient Privacy Rights website:
http://www.patientprivacyrights.org/site/PageServer?pagename=Homepage

What the "Wired Act" does:


Promotes adoption of a nationwide interoperable health IT system
Establishes a public-private partnership to recommend standards for Health IT with just one consumer representative.
Asks another group (American Health Information Community) to provide advice about policy on privacy and security. Again, there is just one place for a consumer representative who will have no power.
Federal funds will only be awarded to vendors that implement the standards determined by these groups. There is nothing to ensure that privacy protections will be up front.
Provides grants to entities and states to adopt Health IT. If policies don't protect our privacy and prevent discrimination, these grants make the problem worse.
Provides grants for massive research and databases for "quality" measures to target those with chronic illnesses; without privacy this detailed information can cause real harm to our sickest Americans.

An electronic health records system would have a dramatic impact:


allow the sale of your medical data
limit your consent rights
abolish and prohibit real privacy laws
expand access to your data
enable tracking of you and your doctors
enable data mining, patient profiling and data linking

This is serious shit for us opiophiles, and will give the government vast control over our privacy, our health care, our medication, and ultimately US.

WarmCyanide
05-19-2008, 12:48 PM
PATIENTS SHOULD HAVE THE RIGHT TO KEEP THEIR RECORDS PRIVATE!!

good post, CJ.

jdub
05-19-2008, 01:11 PM
Fuckin government all in my bizness again!

Where do you find out about this stuff CJ?

Cherry's Jubilee
05-19-2008, 01:46 PM
Just to impress upon you what a universal electronic health records database could mean for some of us...

Once you are flagged as a potential drug-seeker, that label would be available and visible to every single health care provider you use (assuming you use your real name) for the rest of your life, including pharmacists. If there are not privacy protections in place, and for this bill there are not, your entire health history, cradle to the grave, would also be available to your health care providers. Does your dentist need to know that you have erectile dysfunction or an STD or bi-polar disorder? This is an appalling violation of our rights.

It's also doubtless that they would use this to impose criminal penalties on those who may already be double-dipping. Be still my heart.

The reason they are trying to sneak this in without debate is that they know people would be outraged and fight it. Once it's in, it's extremely difficult, practically impossible, to move for a full repeal.

Jdub, I'm a political nerd and I follow all drug-related legislation for fun. Really. :p You can also sign up to receive e-mail updates on legislation you're interested in.

nick
05-19-2008, 01:54 PM
Yeah,we're supposed to have a universal system already.It's multi millions over budget and NOWHERE near ready.It's so messed up that I've stopped worrying about it.

Cherry's Jubilee
05-19-2008, 02:07 PM
Yeah,we're supposed to have a universal system already.It's multi millions over budget and NOWHERE near ready.It's so messed up that I've stopped worrying about it.

The legislation allowing it to be used has never been passed. So even it it wasn't a total mess, it couldn't be implemented. If a bill passes that allows the health care system to legally use it, trust me, they'll find a way. Don't brush it off so quickly.

Besides, I don't know about you, but it even pisses me off for them to have that option.

nick
05-19-2008, 02:08 PM
The legislation allowing it to be used has never been passed. So even it it wasn't a total mess, it couldn't be implemented. If a bill passes that allows the health care system to legally use it, trust me, they'll find a way. Don't brush it off so quickly.

You are quite right,but I live in England.

Cherry's Jubilee
05-19-2008, 11:31 PM
This is happening this week. I hope some of you will take the time to send a quick e-mail and/or sign the petition.

Senators pushed the Wired Act through committee last July without a hearing or any discussion. Last summer the sponsors attempted to ram the bill through the full Senate before adjourning for summer break. The Wired Act was stalled, due in large part to the onslaught of letters sent to Senators. Just before the winter break the Wired Act was stopped again and has not yet been brought to the Senate floor for a vote.

Updated 5/19/08 Sponsors of the Wired Act are again pushing to move this bill quickly by placing it on the Unanimous Consent calendar. This means there will be NO debate and NO amendments to the bill. The current bill has very minor privacy protections and can do much more harm than good.

jdub
05-20-2008, 12:21 AM
I sent the email.

I am a politics nerd as well. Problem is domestic policy bores the hell out of me (even though it is obviously very relevant).

I find foreign policy and international relations to be fascinating.

mrklean
05-22-2008, 06:40 PM
Sent it. Unfortunately, from what I understand politicians pay about as much attention to email as I do to them. But thankyou, for keeping up on this kind of thing and notifying everyone else. It is noble, and kind of you to spend your time in service this way.

EVERYONE click the link it is fast and easy to do, and maybe we can make a difference. It will take you two seconds and may keep your ass out of jail down the road.